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Agashya: Abakobwa bavukanye uburwayi bubagira abakecuru bakiri abana.

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Agashya: Abakobwa bavukanye uburwayi bubagira abakecuru bakiri abana.

Mu gihugu cy’Ubuhinde abana babiri b’abakobwa bavukana, bagaragara nk’abakecuru, ndetse biragoye kwemera ko badashaje, bakaba barabitewe n’indwara itera umuntu gusaza imburagihe yitwa Cutis Laxa .

Anjali Kumari w’imyaka7 na murumuna we Keshav Kumar w’umwaka umwe n’igice bavuka mu gihugu cy’Ubuhinde, bavukanye indwara ya Cutis Laxa ituma bakura bameza neza neza nk’abakecuru.

Iyi ndwara ya Cutis Laxa yatumye bagira uruhu rwipfunyaritse nk’urw’abakecuru, ndetse n’amasura yabo arabyimba, ibi bikajyana no kumva bababara mu ngingo nkuko bigenda ku bantu bose basheshe akanguhe. Ababyeyi babo ntako batagize ngo bavuze abana babo, ariko abaganga babasobanuriye ko nta muti w’iyo ndwara ubaho.


Ubusanzwe ngo indwara ya Cutis Laxa iravukanwa nkuko indwara zo mu miryango zimera, ariko ise w’aba bana witwa Shatrughan Rajak w’imyaka 40, na nyina witwa Rinki Devi w’imyaka 35, nta n’umwe uyirwaye, ndetse na mukuru w’aba bana witwa Shilpi agize imyaka 11 atarayirwara.

Nubwo babwiwe ko nta muti ubaho uvura ubu burwayi bw’abana babo, ababyeyi babo bahorana icyizere ko hari umunsi abana babo bazakira ndetse bakabaho ubuzima bwiza.
Ku ishuri aba bana bigaho ngo babita amazina nka Daadi Amma( Nyogokuru), Budhiya( Umugore ushaje), Bandariya( Inkende), bikabababaza cyane. Ngo bifuza kubaho nk’abandi bana basanzwe, ndetse bakemerwa uko bari.

Ise witwa Shatrughan yagize ati: ” Duhora tugira inzozi ko hari umuti watuvurira abana. Twagerageje kwitabaza abaganga bo mu gace dutuyemo batubwira ko icyizere cyonyine gihari ari ukubajyana kubavuriza mu mahanga”

Nyina, yagaragaje agahinda aterwa n’abana be, ati: ” Birambabaza gusa nkabura icyo nakora, iyo ndebye ukuntu abana banjye basaza byihuse ndetse no kundusa bimena umutima. Mpora nsenga ngo umuti uzaboneke.”
progeria

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